Hey babe, it's Kyra!

Hey babes 💕

Last week was a lot — so many consults, so much information, and of course, a ton of emotions as I keep processing the reality of everything.

Through Baylor Scott & White, I was referred to an oncologist who walked me through the details of chemotherapy — how cycles work, possible Cold Capping and the fact that I’ll need a mediport for administration (something I’ve been crashing out about!!) Chemo hasn’t started — my oncologist wanted the surgeons’ input before moving forward.

Next, I met with an oncology surgeon who explained my surgical options. One possibility is a liver resection (removing a large portion of my liver with cancer). Normally, that could work since the liver regenerates — but because of my PSC, my liver is already damaged and wouldn’t grow back fully. He also explained that this cancer has a high recurrence rate. If it came back after resection, I wouldn’t be eligible for a liver transplant later — and I’d be left with a much smaller, weaker liver and it would NOT be a good situation. While still an option at that point, he wanted me to get a transplant surgeon’s opinion.

When I met with the transplant surgeon, he explained that they don’t often do transplants for people with Cholangiocarcinoma + PSC (because of that high recurrence rate). But, given my age and circumstances, they would be willing to consider me.

The next day, the BSW transplant team reviewed my case and agreed that I would be a good candidate for a liver transplant. So now the next step is two days of testing, consults, and classes at their facility to make sure I’m strong enough for surgery and to walk me through the process in detail.

At the same time, I’m working on getting into Houston Methodist, MD Anderson, and the Mayo Clinic for second opinions. These are some of the top hospitals in the country for my rare combo of Cholangiocarsinoma + PSC, but insurance is slowing things down!! Fingers crossed I’ll be on their schedules soon 🤞🏽

I’ll write another post soon diving deeper into what a transplant really means — but now you’re all caught up on appointments. I’m feeling a bit of relief that things are finally moving forward, but also anxious. It still hasn’t totally sunk in that I (hopefully) will be having a liver transplant — or at the very least, a major, dangerous, and life-changing surgery in the coming months.

Be sure to check out my updated appointment schedule and the hot girl support squad page for ways you can help. I appreciate every bit of love, prayers, and good energy you all are sending my way. Love you!

xoxo,
Kyra 💋✨